Guiding any young adult through a care transition is challenging – and pediatricians must weigh numerous factors when the patient has a developmental disability. In this comprehensive talk, pediatrician Noemi Spinazzi, MD – founder and director of Charlie's Clinic, which serves patients with Down syndrome – lays out key issues to cover, questions to ask patients and parents, how to ensure continuation of essential therapies, and pointers on bolstering patients’ independence and capacity to live full lives. She also offers easy-to-access resources for patients, families and providers.
- List at least 3 key aspects of transition to adult care
- Identify ways in which pediatricians can support a patient with intellectual/developmental disabilities (I/DD) in the process of transition
- Compare different options for supported decision-making for individuals with I/DD